The Cadence of Life
Apr. 7th, 2019 04:40 pmIt was a long, boring week. We finally had a weekend off after three weeks straight of work, and they made up for it last week by barely getting any work to us. I taught the new folks amendments and reprints. I did another round of teaching to our backup crew who helps proof when they can. Almost every day, the majority of the typists were out sick. (At points in most of the week, we were without typists at all, a rare occurrence.) Still, there wasn't much to speak of in the way of exciting things happening. We're waiting on another deadline that will hit on Friday followed by first house passage on the 23rd, which is usually the worst deadline in terms of "Hey, it's 4 a.m. Please come back at 7:30 a.m." infamy we've had to deal with in the past. Given the ridiculous backlog of work we've had to push out in the shortest amount of time I recall in my eight years of working for the state, I can only hope that's not a trend that will continue the whole session, but I also have my doubts. I've never been as aware of the cadence of session and what lies ahead before as well as having so many opposing waves of worry and apathy. Perhaps having so many personal things going on at the same time has something to do with it.
Thursday, I got a text from my mom asking how I was doing. I knew she had dropped by after my dad's appointment at the VA to get a check from Mike, and Mike said she had mentioned that my dad might need spinal surgery. They had been awaiting MRI results on his back because his legs have been bothering him and he's been losing his balance and falling a lot recently, so I was a little surprised it might require surgery. They were also supposed to get an update on the new medication my dad has been taking for his memory for a few weeks, but Mike didn't say anything about that. Still feeling exhausted from the workweek, I finally got up and called her after exchanging a few texts and seeing that she was writing something for quite a while.
She said she hadn't wanted to bother me since she knew Mike was leaving for the final four trip the next day. (Did I ever mention he won that through work? Maybe not. Humph, I'm always a little behind, but it's pretty neat. He took his friend Nate, and a customer got to go as well.) Anyway, I wanted to know how the appointment went since she's been worked up about not getting the MRI results for almost a month. It turns out he has a few disks in his spine that are slipping near his tailbone, and the spinal column is narrowing, causing the nerves to get squeezed (or something? I only sort of understand). Since this means inflammation isn't the cause of his pain, the next step is they've been referred to a neurosurgeon to see if he needs surgery or if there are other steps they can take first. Also, my mom was able to convince him to get a walker for stability when he's out and about, and also, it qualifies him for permanent disability placards for the car, which is probably helpful since he seems a little wobbly when he walks now.
Regarding the medicine, she said, "You ever read 'Flowers for Algernon'? This kind of reminds me of that." I said I had but didn't remember how the story went. She explained, "Well, there's a man who gives medicine to a mouse, and the mouse's memory improves for a bit. So the man starts taking the medicine, and his memory improves for a bit. But then he sees that the mouse declines, and he knows his is going to decline again too."
My dad has Alzheimer's disease.
The doctor didn't give her a stage, but he said that's what the medicine is for. My mom says it has improved his short-term memory over the last couple of months, and his memory seems to be pretty stable. The medicine sometimes causes nightmares, but those have subsided. My dad seems pretty happy, she says. It's made him much more pleasant to be around, she says. He thinks it is a miracle drug.
My selfish first thoughts were, "What if we're finally able to have children, and he doesn't remember them?" followed by, "I should have seen this coming. Granny didn't remember me right before she died either, and that was devastating."
My parents have been in the process of trying to figure out some of his projects. She's been after him for years to sell the radio station and find someone to take over the Irish-English dictionary he's been working on for almost forty years, since we won't know what to do with it. He's supposed to have someone from the Irish government coming by soon to take a look at it and see if they're able to take the whole project off his hands, which would be the best place for it. They also have someone interested in the radio signal and station, even with its outdated equipment. He's also expressing interest in selling some of his ham radio equipment he doesn't use and is headed to a swap meet in Visalea next weekend to see if he can get rid of some stuff.
While I am somewhat relieved that they are taking care of these loose ends, I am worried that all of this happening at once is a bad sign of things to come. I asked my mom, "What is he going to do with his time if he doesn't have those projects to work on?" She said he still has his other hobby of framing computer components for his "museum" he keeps in the house. That'll keep him busy for a while, she thinks. He has to have something to do, after all. He can't fade that quickly, right? Really, who knows?
My brother called last night and said my mom had told him. He then launched into all these things that he should be doing now that dad's on "borrowed time." He said realistically, there's probably about a year before dad declines completely, and it was probably up to my brother to start cataloguing stuff for my dad's museum. He expressed sadness that he didn't spend more time with him before now and said he'd need to do more.
I got angry at him immediately. I told him to stop.
Yeah, I get it. I really do. It's a scary prospect to think that one day, Dad won't recognize us. It's terrifying to wonder about the future and how things are going to change. I had my own selfish thoughts. I had my own wonders about where my mother has been now that she's decided to be my dad's advocate when she hasn't even really seemed to like the man in many, many years. (And Mike's right here too. When I said this, he said, "You can't blame her. At least she's here now.") I've thought about how much life has changed since we've left home, and even now as I sit here, I wonder why I didn't go out to eat with him more often like he always said we should.
Still... As I told my brother, we can't change what we've done in the past. We can't predict how long we have left. No one knows that. We don't know how his memory will go or what kind of quality we'll have or the length we'll have before it's all gone. Don't put a timeline on it. Don't stop living your life. Things are changing, but it doesn't mean life is over already. Dad's still here. His memory is still here. It could be years before it goes away entirely. Live in the present. Do your best going forward. That's how life goes.
I say these things to him hoping I'll remember them myself when times are dark and when hope seems lost. Live for today. It's all we have.
Thursday, I got a text from my mom asking how I was doing. I knew she had dropped by after my dad's appointment at the VA to get a check from Mike, and Mike said she had mentioned that my dad might need spinal surgery. They had been awaiting MRI results on his back because his legs have been bothering him and he's been losing his balance and falling a lot recently, so I was a little surprised it might require surgery. They were also supposed to get an update on the new medication my dad has been taking for his memory for a few weeks, but Mike didn't say anything about that. Still feeling exhausted from the workweek, I finally got up and called her after exchanging a few texts and seeing that she was writing something for quite a while.
She said she hadn't wanted to bother me since she knew Mike was leaving for the final four trip the next day. (Did I ever mention he won that through work? Maybe not. Humph, I'm always a little behind, but it's pretty neat. He took his friend Nate, and a customer got to go as well.) Anyway, I wanted to know how the appointment went since she's been worked up about not getting the MRI results for almost a month. It turns out he has a few disks in his spine that are slipping near his tailbone, and the spinal column is narrowing, causing the nerves to get squeezed (or something? I only sort of understand). Since this means inflammation isn't the cause of his pain, the next step is they've been referred to a neurosurgeon to see if he needs surgery or if there are other steps they can take first. Also, my mom was able to convince him to get a walker for stability when he's out and about, and also, it qualifies him for permanent disability placards for the car, which is probably helpful since he seems a little wobbly when he walks now.
Regarding the medicine, she said, "You ever read 'Flowers for Algernon'? This kind of reminds me of that." I said I had but didn't remember how the story went. She explained, "Well, there's a man who gives medicine to a mouse, and the mouse's memory improves for a bit. So the man starts taking the medicine, and his memory improves for a bit. But then he sees that the mouse declines, and he knows his is going to decline again too."
My dad has Alzheimer's disease.
The doctor didn't give her a stage, but he said that's what the medicine is for. My mom says it has improved his short-term memory over the last couple of months, and his memory seems to be pretty stable. The medicine sometimes causes nightmares, but those have subsided. My dad seems pretty happy, she says. It's made him much more pleasant to be around, she says. He thinks it is a miracle drug.
My selfish first thoughts were, "What if we're finally able to have children, and he doesn't remember them?" followed by, "I should have seen this coming. Granny didn't remember me right before she died either, and that was devastating."
My parents have been in the process of trying to figure out some of his projects. She's been after him for years to sell the radio station and find someone to take over the Irish-English dictionary he's been working on for almost forty years, since we won't know what to do with it. He's supposed to have someone from the Irish government coming by soon to take a look at it and see if they're able to take the whole project off his hands, which would be the best place for it. They also have someone interested in the radio signal and station, even with its outdated equipment. He's also expressing interest in selling some of his ham radio equipment he doesn't use and is headed to a swap meet in Visalea next weekend to see if he can get rid of some stuff.
While I am somewhat relieved that they are taking care of these loose ends, I am worried that all of this happening at once is a bad sign of things to come. I asked my mom, "What is he going to do with his time if he doesn't have those projects to work on?" She said he still has his other hobby of framing computer components for his "museum" he keeps in the house. That'll keep him busy for a while, she thinks. He has to have something to do, after all. He can't fade that quickly, right? Really, who knows?
My brother called last night and said my mom had told him. He then launched into all these things that he should be doing now that dad's on "borrowed time." He said realistically, there's probably about a year before dad declines completely, and it was probably up to my brother to start cataloguing stuff for my dad's museum. He expressed sadness that he didn't spend more time with him before now and said he'd need to do more.
I got angry at him immediately. I told him to stop.
Yeah, I get it. I really do. It's a scary prospect to think that one day, Dad won't recognize us. It's terrifying to wonder about the future and how things are going to change. I had my own selfish thoughts. I had my own wonders about where my mother has been now that she's decided to be my dad's advocate when she hasn't even really seemed to like the man in many, many years. (And Mike's right here too. When I said this, he said, "You can't blame her. At least she's here now.") I've thought about how much life has changed since we've left home, and even now as I sit here, I wonder why I didn't go out to eat with him more often like he always said we should.
Still... As I told my brother, we can't change what we've done in the past. We can't predict how long we have left. No one knows that. We don't know how his memory will go or what kind of quality we'll have or the length we'll have before it's all gone. Don't put a timeline on it. Don't stop living your life. Things are changing, but it doesn't mean life is over already. Dad's still here. His memory is still here. It could be years before it goes away entirely. Live in the present. Do your best going forward. That's how life goes.
I say these things to him hoping I'll remember them myself when times are dark and when hope seems lost. Live for today. It's all we have.